Maternal perspectives: The needs of Saudi families of children with Down's syndrome.

Down syndrome (DS) is a chromosomal condition that is affecting an increasing number of infants born in Saudi Arabia. This study investigates the needs of families with children with DS in Saudi Arabia from mothers' perspectives and in a cultural and religious context. An exploratory qualitative research design was used, and semi-structured interviews were conducted with 14 mothers of children with DS. Interview data were thematically analyzed. The most important need was found to be financial or tangible support. An increase in benefits or monthly financial allowances and social security insurance would address these concerns. Societal support is also needed; mothers want DS to be perceived differently and require more support, including better rehabilitation and education services. Informational support is needed to improve the conditions of children with DS. Recommendations for improving the quality of life of children with DS are discussed.

Citation

Waleed Alabri. Maternal perspectives: The needs of Saudi families of children with Down's syndrome. Journal of intellectual disabilities : JOID. 2023 Mar;27(1):221-237

Mesh Tags

PMID: 35144500

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